Ned Henry February 3, 2021 · nedhenry.medium.com
My foot is as painful as it’s ever been this morning. It woke me up at 6 AM. It feel like fire on the top of my left foot. Maybe an 8 out of 10. Pain doctors always try to measure pain that way. I’ve yelled and screamed and moaned and cried. Anything to just tolerate this level of pain. Nerve pain. Called Sue. Called Palliative care.
2 PM — Palliative care is giving me a new Rx for Lyrica. So we’ll try that. This is still a reaction to the Vincristine in the chemo cocktail and I will discuss with the oncologist tomorrow.
Bit the bullet and had my tutoring session with Yunus. Did not let on with him that I was in pain. We had a good session. He told me when we signed off to stay strong. He’s such a good kid. We worked on calcuations with fractions and by the end of our hour he was doing the problems by himself. He says he likes the way I teach since he ends up getting it better. Of course, it’s one on one and math teachers have some 20–25 at a time. I used to sub teach 4th grade for while and I know what a hard job teaching is. And I did not pursue that career because I made more money in oil and construction at the time. Allen just got here with a bunch of food for me. Later.
Almost 8 PM — Been a busy day but not sure I accomplished much. My leg is still numb. Not as painful. Got new meds for it — Lyrica. We’ll see. Big pow wow with the Oncologist tomorrow. I know what I want to ask and I have put together an agenda for the meeting but It still needs to be refined with input from Sue and Jack. Got a wonderful Valentine from Ronna with more Indica. God love Ronna. Oh and I got the coolest text message from Jake and Shivy. It was an audio text and just so lovely to hear both of their voices and them giving me their well wishes and caring and love. Very special moment.
11:22 — Stoned all night just to tolerate the side effects of the chemo. The pain and numbness of my foot stumbing around the house with a cane to keep myself from falling. Watched a good movie. Punch Drunk Love. Really Good. Saw a lot of myself in that movie. Adam Sandler. Good. Thinking alot about cellular therapies and what they really mean in the treatment of DLBCL which is what I have. And how do I ask the questions most effectively with Dr. Allen tomorrow. And looking at this Valentine and remembering the Sarma I ate for dinner 3 times this week from Vera, Sasha’s mom. I love Sarma and am so lucky to know so many of you who make it. I am going to give it a try myself some day. Listening to the Dead channel and the base line Phil Lesh lays down in their songs. It’s really like a dance of instruments listening to them when you’re stoned. I’m gonna post for the day. Been a slightly downhill day.