
Ned Henry February 26, 2021 · nedhenry.medium.com
Noon — Sorry I’ve taken some time off from writing as I try to figure out where to go with this. The writing is therapeutic for me but when I feel like all I’m doing is complaining, I hate to burden any reader with that. I have been a bit discouraged of late due to the neuropathy in my feet. When you can’t feel your feet it makes simple things like walking difficult. And the meds they gave me are not working. So the thought crossed my mind that I might not be able to walk normally again and that was discouraging to say the least. However, today I saw a specialist downtown who gave me some real hope. He did a thorough exam and we have a plan. We will start with specialized PT for neuropathy 3 times a week. They will also do a driving assessment to determine if it is safe for me to drive with this neurappthy in my feet. It mostly affects my left foot so I should get an all clear. At least I hope so. If it is safe for me to drive, that will take a huge load off friends when I have to go to these doctor appointments. He also gave me an Rx for a topical cream and advised that I have not been taking the Lyrica long enough for it to have any positive effect yet. He is also in favor of acupuncture so I will check with insurance about that as well. The palliative care people at the cancer center referred me to this specialist in Physical Medicine and Rehabilitation. I think it was their last best hope for me to get this neuropathy under control. So we have a plan now which we will begin. Still can’t sleep much at night but first things first. Cross one bridge at a time. Next week I get dose 2 of the Covid vaccine on Tuesday, and a PET CT scan on Wednesday and the next chemo on Friday. The PET CT will tell us if the chemo is working on my bones and spine. I can see it working in the areas of my body that I can see like my gums and my skin. Fatigue is still a significance side effect and not sleeping much doesn’t help with that. Hopefully all these treatments will work better and allow me to get some rest at night. I hate being up all night just concentrating on my breathing until I can finally doze off at 5 or 6 in the morning. None of the meds they have given me for sleep help very much. So there you have it. I will keep writing. I know it helps me process this disease and really my life as I get toward the last of it. But with any luck at all, I’ll have another 20 years or maybe longer. So many have offered so much help and support through all this. I sometimes don’t feel like I deserve all the help. But I am so grateful for it and frankly don’t know what I would do without the help of such dedicated friends. So I’ll just accept the fact that some folks out there really do care about me and what happens on this journey as I face cancer and I owe it to you to keep writing to let know how I am progressing. Since I slept almost not at all last night and had to get myself downtown with John’s help to see this doctor early this morning, I think I am going to take a nap for a few hours if I can. But I’ll be back later. Liz brought me some chocolate croissants this morning. And I’m making some good progress with that book from a cancer survivor which so far is pretty good. Thank you to all of you for your love and support.